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[at-l] [NVIC] Lyme Vaccine

>>Vienna, Virginia            http://www.909shot.com
>>"Protecting the health and informed consent rights of children since 1982."
>>Following is a press release issued jointly by the Lyme Disease Foundation
>>and the National Vaccine Information Center (NVIC) on May 23, 2001 and a
>>statement made at the press conference by NVIC co-founder and president
>>Barbara Loe Fisher.
>>Washington, D.C. – May 23, 2001 - As Lyme disease cases reach a record high
>>across the country, representatives of the patient community traveled to
>>Capitol Hill today to lend their voices in support of new legislation
>>designed to give them a greater voice in the direction of Lyme disease and
>>other “tick-borne disorder” federal research. Senators Christopher Dodd
>>(D-CT) and Rick Santorum (R-PA) announced the introduction of a bill to
>>establish a Tick-Borne Advisory Committee, appointing public members from
>>the patient and research community to interact with government officials
>>responsible for Lyme disease research and public education activities.
>>The patient community has long felt alienated and ignored by federal
>>research efforts.  Additionally, the debate about treatment methods for this
>>illness has led  many physicians to refuse to accept Lyme disease patients
>>further limiting access to quality treatment.  In announcing this
>>initiative, the Senators held up this model of patient and government
>>interaction as an effective mechanism for moving research and treatment
>>development forward.
>>Compounding the patient community’s frustration is a continued distrust of
>>the efficacy and safety of the lone vaccine on the market.  Reports of
>>serious adverse reactions in some vaccine recipients are prompting many
>>experts to call for a re-examination of the vaccine and its usefulness to
>>the public in general.
>> “We need a vaccine but the one out there right now is surrounded by
>>question marks, said Karen Vanderhoof-Forschner, co-founder and president of
>>the Lyme Disease Foundation, which sponsored the rally.  “I cannot in good
>>conscience encourage anyone to take the vaccine.  There are just too many
>>unanswered questions.”
>>  Research scientist Paul T. Fawcett, Ph.D. of the Alfred I. duPont Hospital
>>for Children, spoke about the findings of a well-controlled study examining
>>the effects of the Lyme vaccine on diagnostic tests which also documented
>>serious adverse events associated with the vaccine. He was joined by Ronald
>>Schell, Ph.D., University of Wisconsin Medical School and Wisconsin State
>>Laboratory of Hygiene, and Julie Rawlings, MPH, Texas Department of Health.
>>Barbara Loe Fisher, co-founder and president of the National Vaccine
>>Information Center and vaccine victims Jenny Marra, of New Jersey, and Joe
>>Smigo of Pennsylvania, also urged federal health agencies to investigate
>>mounting evidence that the current Lyme vaccine is too reactive.
>>   As a parent of a DPT vaccine injured son, my heart goes out to all of the
>>adults and children who have suffered devastating health problems after
>>either Lyme infection or Lyme vaccination. The pain and suffering, whether
>>from a disease or a vaccine, is the same and we must find more effective
>>ways to treat and prevent Lyme disease.
>>   From a consumer advocate perspective, putting the public back in public
>>health means being truthful with the people about the benefits and risks of
>>any medical intervention and allowing fully informed, voluntary
>>decision-making. If vaccine manufacturers and health officials are not
>>honest with people about vaccine risks and write off serious health problems
>>following vaccination as mere “coincidences,” as has happened with the Lyme
>>vaccine, then the people are going to lose faith in the vaccine system.
>>   Karen and Tom Forschner had faith that the system would work when they
>>joined with federal health agencies and a vaccine manufacturer to support
>>development of a Lyme vaccine. Now they cannot turn away from the terrible
>>suffering that has resulted from inadequate disease treatment and use of a
>>vaccine that is just too reactive.
>>   We need to do everything we can to insure the highest standards are
>>maintained for vaccine licensing and policymaking in order to truly protect
>>the public health. The National Vaccine Information Center stands ready to
>>work with the Lyme Disease Foundation, scientists, legislators and public
>>health officials to do what it takes to develop more effective treatments
>>for Lyme disease and make sure that there is full public disclosure by
>>vaccine manufacturers and health officials of all risks as well as benefits
>>of any vaccine on the market.
>>News@909shot.com is a free service of the National Vaccine Information
>>Center and is supported through membership donations.  Learn more about
>>vaccines, diseases and how to protect your informed
>>consent rights http://www.909shot.com
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>>NVIC is funded through individual membership donations and does not
>>receive government funding. Barbara Loe Fisher, President and Co-founder.
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